Friday, 30 July 2010

Semalam dan Hari Ini.

salam to all.

Balik dari kerja jam 5pm(kekadg lambat), bergegas ke nursery utk amik anak anak. Kemudian ke rumah jiran satu taman perumahan untuk ambik yg sulong. Memandangkan beliau sudah bersekolah tahun 1, maka menumpang sekejap di rumah jiran sblm ke sekolah agama di sebelah petang (2-3.30pm). Sampai di rumah, tanpa berlengah solat Asar dan terus ke dapur menyediakan makan malam. Dalam pd itu , sempat membancuh teh utk minum petang dan goreng pisang yg dibeli di gerai tepi jalan. Dalam terkocoh kocoh memasak, tugas menjaga anak kecil diserahkan pd ayahnya. Namun biasanya bertahan sehingga jam 6pm shj, dgn alasan ke palyground melihat anak2 lelakinya bermain di sana. Dan ayahnya join main jugak, bola tampar bersama bapak2 yang lain.

Hampir jam 6.45pm, maka siap jugak makan malam. Siapkan anak kecik setelah seharian di nursery. Jika berpeluang, masa itu lah digunakan utk menjenguk(meeting seberang pagar) dgn jiran sekeliling rumah :) Nanti di kata anti sosail pula jika tidak bertegur sapa dan tak amik tahu hal sekeliling. Hampir maghrib, barulah nampak muka anak2 dan ayahnya. Mula lah sibuk berebut bilik air..

Sebelah malam pula selesai mengaji, anak2 kena duduk menyelesaikan kerjarumah mereka. Anak yg tahun satu tu, homeworknya boleh tahan. Sampaikan mamanya tak larat nak tunggu. Tak tunggu nanti alamaknya tak siap ler..Ayahnya mula meragam nak kuar lagi (menge teh), ..cepat2 kena cantas. Mana bole jadik kan..Tp kdg2 terlepas jugaa.

Pagi esoknya, pukul 6.30am anak yg sulong dah siap bersarapan. Jam 7 harus bersiap sedia dan cek buku sekolah dan jadual waktu. Kemudian, siapkan yang dua orang untuk ke nursery dan apa2 yang perlu dibekalkan ke nursery. Sarapan kami pula di mana2 gerai or restoran on da way to opis. Makan tghr juga hasil tgn pakcik makcik gerai. Senangnya hidup..

Begitu la aturcara harian..di Malaysia.

Di sini pula, anak2 sdg bercuti sekolah ni. Asyik kuar main bersama jiran sebelah(Korean) or di dpn kompt. Slot mengaji selepas ayahnya pulang dari Uni. Maknya pula setiap hari memikirkan apa menu hari ni. Ketika itu lah, saya membayangkan gerai2 yang tersedia di tepi jalan itu. Menghitung hari, lambat lagi ke ayahnya siapkan kerja belajar nih ? Tak lama lagi musim bertukar sejuk. Summer beralih ke Autumn ke Winter. Arghhh.Dugaan hebat menanti waktu Winter.

Shbt2 ku;
Itulah putaran hidup saya. Tidak lepas dari kenormalan sahabat2 di sini yang merantau di negara orang. Apa yang kami alami sekarang tidak pernah terbayang di fikiran sehingga sampai di sini. Nak kata tak suka, tentu lah suka kan (in term of kenal tmpt org). Nak kata suka sgt tu, tidak juga,,(byk perkara yg perlu diadaptasi bg kita org Asia) Anak2 kejap2 ada juga merengek nak balik Malaysia. Hmm.. miss my bike katanya. Mereka juga masih ingat bbrapa perkara yg mrk tinggalkan, cthnya rumah kami, sekolah, cikgu tadika dan kwn2 mrk.

Apa yang dpt dikatakan ialah pengalaman ini akan menjadi sesuatu yang dirindui suatu hari nanti. Baik anak2 dan ayahibunya, semua yang kami 'dapat' di sini akan diambil pengajaran dan dimanfaatkan.

Till we meet again, see you soon. very2 soon.

Wednesday, 28 July 2010

Sweet Seventeen.

Salam to all;

Today i am 36 yrs 3 days old. It is definitely a remarkable special for me. The day when the numbers become a year higher means a lot to anyone. For me it is a huge achievement. Sounds silly? Ok , let's laugh then.

When I was diagnosed with Lupus Nephritis stage 4 about 17 years ago, there were a few incidents that I don't really wanted to hear and keep in mind. Unfortunately it keep coming into my mind..

First was; when i was still in ward and still on dignosed. My mum asked to a doctor: ''it has been quite anumber of blood checks and look at her arms now. look like belongs to a drug addict''. Doctor: ''We have to, makcik. It is because most probably she has a very rare serious illness,'', with a firm voice intonation as if my mum would grab the syringe away from her..!(she was about to carry out another blood sample job). The conversation just in front of me who laying restlessly so i can catch every single thing she said.**sigh** What would you expect a makcik to understand clearly and take that kind of answer?? And what about the patient herself??

Second was: I was then discharged and back at home when coincedently there was a forum about SLE on telly.The forum invited an expert talking on this illness. To response one of the callers, he said 'For those who disgnosed with serious SLE , we would say that he/she could have another 5 years to live ..'. I was in front of telly watching and without a second my mum asked me to get into the room to get some rest.

Dear friends; At the beginning, as I was just known about what had happend to myself, it definitely took a while for me to absorb and understand well my condition. Not blaming anyone of any heartbreaking regarding this issue(death) but..I need to get all the power inside out to instill into my mind. I really need it in order to survive and beat this illness. The question was; where and how could i search for it? To ingnore what people/doc say about this is one thing and to empower n strenghten my spirit is another thing. To please and ease my beloved ones not to be too worry is the hardest.

Alhamdulillah, everything has gone well and will be better.. I just want to hold on tight with what I stand. Be positive..berusaha,sabar, tawakkal dan redha.

It is 36th birthday but deep inside my mind it is actually 17th Me. 17years reincarnation of me. Syukur.

It means soo much.. only God knows.

Till we meet again, see you soon, very very soon.

Tuesday, 27 July 2010

Falling to the Beaches & Angel of the North.

Salam to all.

Beberapa hari juga bercuti dari blog ni. Lbh2 lg cuti sekolah sdh bermula, persaingan menggunakan komputer turut sengit :))
Sepanjang hujung minggu lepas kami meninggalkan rumah utk short holidays to East Yorkshire(rumah kami ni kat Sheffield, South Yorkshire). to seek for beaches we'r longing for. Honestly, i feel i'm so in love in beaches, seasides which is a part of our nature. Smell the sea, feel the breeze. it takes me back to my hometown and my childhood. tentula la kan, originally comes from east coast malaysia..
We reached our first destination; Bridlington Beaches. First impression when we saw the beautiful beach..WOWW..nampaknya my kids r also falling to the seaside. Alhamdulillah, weather was brilliant. Dptlah mereka bermain pantai dan turn berendam. Pantainya landai, sgt sesuai melepaskan gian mandi laut. Dgn sdkt bekalan mknn d keperluan lain, semua berjln dgn baik sekali. Walaupun menghadapi air laut yg agak sejuk tp itu semua tdk menjejaskan keseronokan mrk. And I was excited too..Terlepas rindu dendam pantai pemandangan laut yg amazing tu.
Next we went to Flamborough Highlands, where we can see amazing white cliff waiting for us. This time was WOW WOWW..sgt cantik, similiar yg dpt dilihat kat Land's End, Cornwall. Pantai nya lbh menawan. Singgah kejap di sini menikmati fish n cips yg amat la lazat n fresh(sbb selalu nya tak rs sedap mcm tu). Tmpt ni juga byk menjual seafood fresh from sea. Bergegas meninggalkan tmpt itu ke Flamborough Light House, one of the attractions. Kemudian we drove to Filey caravan site. Berjumpa dgn rakan2 juga dr Shefield yg menginap di situ. Just to join the bbq party. Tq krn sudi menerima kami sbg tetamu. Makan makan dan makan ..

Hari menjelang malam,kami terus ke Scarborough utk check-in ke hotel utk 1 mlm. Berhampiran dgn pantai Scarborough yg indah, tidur malam kami amat enak ..ditmbh dgn keletihan main pantai+ perut yg penuh dr bbq :))

Esoknya pg2 lg check-out, tak sabar nak menikmati pantai di sini pula. Tmpt ini lbh luas dan besar, berada di tgh2 bandarnya. Sungguh nyaman..puas hati dgn trip kali ni.
Hari tersebut juga Hari Lahir sy ke 36. Sungguh terharu dgn ingatan insan2 tersayang di hari kelahiran saya dgn sambutan yg spontan dan sederhana ttp tentunya amat diingati..Apatah lagi dlm suasana bercuti di tepian pantai. Sy berdoa agar kami sekeluarga aman bahagia sehingga akhir hayat dan dikurniakan rahmat Allah sentiasa. Ameen.

Kami juga bersempatan singgah ke carboot sale di Sea Ham..Tmpt ini bersebelahan pantai. Angin pantai menghembus, satu pengalaman yg menyeronokkan.Sungguh !
Menginjak dari situ, kami ke Newcastle about 2hrs away. As that was first visit to Newcastle, tersesat2 jugak dlm 30min dlm bandar. We got lost to reach his target attractions place, Angel of The North. Masa pusing2 tu pon byk kali ternmpk sculpture angels kat tgh2 bandar. Tp bukan yg itu, khabarnya tmpt itu cantik berseni. I didn't feel excited to go there, but as we had no other idea so cari jugak la tmpt tu. tp tak jugak jumpa2.

Akhirnya dpt singgah makan, dan sewaktu menikmati hidangan , kami di sapa oleh satu family Melayu yg juga study di Newcastle. Disbbkan keramahan dan kesungguhan mrk, maka dapatlah kami menumpang singgah di rumah beliau utk menunaikan solat dgn selesa dan menyelasaikan apa yang patut. Perbualan juga sgt rancak walaupon itulah pertemuan yg pertama. Mereka juga turut mencdgkan agar ke riverside di tgh bandar. Kami amat berterimakasih kpd mereka, ye lah..first time kenal dan jumpa n we juz click-in. Sampaikan sewaktu dlm perjlann, they gave us a call to ensure we reached the place safely. terharu sungguh..

Sejam di situ, kami beransur dan meneruskan perjln ke city, Riverside (Gateshade Quays). Terdpt sebtg sungai yg mengalir d tgh2 bandar Newcastle, di hiasi dgn bridge yg berbagai bentuk, byk pula tu. Amat indah pemandangan di situ di waktu remang2 senja. Memandangkan hari sudah lewat, kami harus segera pulang ke Sheffield yg jauhnya 2.5 hrs away. Dlm perjln pulang ke Sheffield, kami ternampak sculpture gergasi Angel of the North yg terletak tinggi nun atas bukit (yg kami cari2 sampai tersesat petang tadi) dari dalam kereta. Tetapi, kami sudah tidak teringin utk ke situ lagi, kerana kami telahpun dipertemukan dgn 'angels of the north' iaitu family yg telah menumpangkan kami solat dan berehat seketika di rumahnya. Sesungguhnya Allah mempunyai jalan atur ke atas hambaNya, Maha Mengetahui Tuhan Yang Memerintah sekian alam. Subhanallah..

Till we meet again, see you soon,,very2 soon.

Friday, 23 July 2010

Truly Faith.

Salam to all;

Today is the last day of school term. They will start summer break holidays for 5 weeks. Happy n big relief...!It's me who feels that, hahar. So, there will be no harsh morning to prepare breakfast, lunchboxes, pull in the princess to the bathroom. NO headache thinking what menu for their lunchboxes for 5 weeksss. yesss:>
Well actually, mum sometimes got bored darlings, not at you but at the so-so-dull routine.

It has been a few days now I left my past time story. Today I will continue my days during the chemo treatment. The second cycle of chemo treatment came 3 months later. And so the next cycles. Day after day, the physical effect appeared. As told, my hair kept falling..This left me almost bold. But not as you seen on telly or any cancer patient who undergo chemo regularly. It was nothing much can be done about the falling hair,..I tried hard not to mess the room with my falling hair especially while brushing it.

My body getting slimmer. maybe because of the healthy diet I was on. When dressing up time,lot of my dress looked as if they belong to anyone else! Then only I knew how good to become healthy and slimmer. I feel like 'reincarnation' person. Became lighter in physical.My mind became more focused and lots of the time I learned how how to let go 'stress' and rubbish thingy. ohh..what a fresh feeling.

Later I thought that if not because of Lupus, I won't be as I am. This feeling proves ..'Allah certainly has reason to put your life with it, always think positive, and never regret and you will know the goodness if you put your faith to Him'.

Till we meet again, see you soon, very very soon. Take care.

Wednesday, 21 July 2010

Meet Nirvana & Queen.

Salam to all;
Alhamdulillah. hari ni rs lega. ntah, tak tau kenapa. *wink*

Semalam petang three of us went to watch summer concert (theatre) at school. This was one of three optional slot as to give convinience time for the parents to come and we chose Tuesday evening. The hall was fulled with parents, as too support their kids. Actually, there are 3 similar concerts thruout a year, two others are before Spring holiday and Christmas concert. All the concerts are pupils involvement under supervision of assigned teachers. Well, in a way it is pathway for the kids to show their talents as well as to experience/ build up the teamwork commitment. For us, it's such an advantage and exposure to my kids in term of foreign culture.

On arrival, we saw most of the parents were seated in front of quite big and attractive yet creative stage. There were two big groups pupils on the left and right of the audience seat. We took a second last line, next to a Malaysian-chinese parents whose one of their kids is in the same class with Khairie. And the show began..

To our surprise, suddenly, a loud music aired and we thought it was minus one version.. 'Come as You Are' a song with an ultimate brave drum beaten engulfed the hall. The joy and excitement took place, like wanna stand up and headbang...err just joking, ok:)
The song, originally from Nervana was really energetic intro to the show theatre to live up the hall. Live concert from the boys band.! Fantastic! Soon after that, the theatre titled Hammey Hamlet then began, a kinda History of Ancient Period. layan jer la.


Segment Pirate War. Khairie is at the back in stripy brown t shirt.

To assure the crowd are awake watching, the next song in between the show took place. This time was 'We Will Rock You' by 'Queen'. The theatre and band show involved all Y6 pupils. oh my, they just know how to push the button ! :D.
Of course we didn't miss our boys appearence in Dancing segment(Azraie) and Pirate War Segment( Khairie). So, this show was actually conducted by Y6 assisted by another classes in Key Stage 2 ; Y3,Y4 & Y5 under their teachers supervision. The 1 hour show ended at about 8pm. Good job to everyone.!

When my kids back to our hometown, I hope to see their commitment and effort in teamworking as they did here. I am not going to make a random comparison between these two countries. But deeply inside, I really looking forward to seeing at least they will make it benefit in future.

Till we meet again, see you soon, very very soon. Take care.

Tuesday, 20 July 2010

Warmy Rainy Night.

Salam to all.
It was a warm night i couldn't have a tight sleep nor my husb. The kids seemed juz fien with it. Except my youngest had been awoke a few time with a lot of cry. My teeth mummy its soo painful. Not difficult to find the cause as her fav are choc, ice cream and sweet.,ok.. This morning she herself has made a new resolution..no more choc and sweet. As she said, "ice cream is not sweet, so, I will still have it".

Today's weather is not so promising, the rain falls since early morning. Guess what, yesterday we had a nice day at 24C..! UK's weather is crazy, that's what some say to me. Well, i think i need to absorb it. Definitely yess. huhu..

Weather issue is one of famous topic as a introduction of a chat among us. For example when I send the kids to school and meet others mums. ' Oh what a nice day' 'Its brilliant day' ' soo freezing cold today' bla bla before get into another topic.

I hope the weather will become brilliant this weekend. At least at the place we're staying for a couple of days. As the schoolbreak will start on this Friday, we think we'll bring the kids for a short holiday. And hey, I need it too. Don't ever say that being a home maker is somekinda holiday. I do need a break.

Walking around my FB friends' wall, I have gained more knowledge about Lupus. Actually I have a few Lupus friends and become a member of Lupus group as well. Each of us has different story to share. There are ppl who are having painful days, I do really feel sorry for them. Also who are mentally tortured with wrong behaviour from others. from the ppl who are not kind to us. It seems that our message is not delivered rightly. some got the wrong message. Lupus is not our dream to hv, but when it has become a part of our life and stay in permenantly, what else you could do other than what we are doing now??? Fortunately we do have ppl who really care and for that I thank you soo much. Not easy to bother on a matter like this, rite. So I want u to know that you'r the besttt:)

Dear friends;
That's all for today. Till we meet again, see you soon,,very very soon. Take care..!

Monday, 19 July 2010

Melawat Doktor :)

Salam to all
Kids just off to school. This week is their final week before they start the summer holidays for about 5 weeks. Everyone has something in mind. Azrai will have to perform on his summer concert 'Tudor' , Khairie needs to get prepare for his 'pirate show and yasmin gonna have her minibeasts party on Thursday. Mum and dad has been given a ticket each for the concert. In a simple words; there is no more headache classromm learning but practising for hup hup hooorayy time..! Sama jer la cam kita dulu, kalu dah nak cuti,of course mood holiday 200% will take place.

Dear friends;
Kembali pada memori silam itu.
Selepas kemo yang petama tsbt, sy dikehendaki follow up spt biasa. Kali ini mainly utk observe whether the chemo works to fix my condition or else. MMmmm... sewaktu menunggu giliran semasa temujanji dgn pakar perunding, saya lihat ramai pesakit kronik berkaitan masaalah buah pinggang yg juga menunggu giliran. Kebanyakan pesakit dari golongan berumur. Berbilang bangsa. Malah ada yang berada di atas kerusi roda dan juga strecther. Ada seorang doktor lain juga di bilik yang berlainan utk melayan pesakit2 yang hadir. Kes saya dirujuk kpd pakar, memandangkan keadaan saya yg agak serius juga.

Saya rasakan saya agak terasing ketika waktu menunggu. Keseorangan. Oleh kerana tempoh menunggu agak lama juga (2-2jam setengah),diri sy tidak dapat lari drpd merasa agak gelisah .. gelisah menahan sabar dipanggil masuk ke bilik doktor dan gelisah dgn pandangan pesakit lain terhadap saya..Seolah pelik,.. seorg wanita muda duduk bersama mereka. Ada juga senang diajak bersembang..tak kurang yang mengeluh terlalu lama menunggu ditambah keadaan mereka yg sedang tidak sihat. Apalah yang mampu sy lakukan utk menghilangkan kebosanan. Hanya menunggu dan menunggu. Sesekali menoleh ke arah nurse yang tiba2 kelaur dari bilik doktor..manalah tau, giliran sy sudah tiba.

Setelah selesai berjumapa doktor, sy dikehendaki melalui ujian darah dan urine. Akhir sekali sy ke kaunter uabat di farmasi utk mengambil bekalan ubat. Menunggu dan manunggu giliran. Itu lah routine setiap kali appointment ke hospital. Semua sekali mengambil masa lbh krg 3jam lebih. Senang cerita, kelas pagi utk hari itu burnt begitu shj. Selesai urusan di hospital, sy bergegas ke kelas petang jika ada. Esoknya sy berjumpa dgn pensyarah yg mana kelasnya terpaksa sy tinggalkan utk melayangkan 'MC letter'.

Hari ini sy cuba utk menyoroti perasaan sy ketika itu. Ujian hidup yg dilalui sgt mencabar jika dibandingkan dgn usia dan keadaan diri. Adakah sy letih dan memberontak? Seingat sy tidak pernah. Jika ada pon, sy luahkan kpd kawan2 yg sedia maklum. Meskipon tak ramai yang mampu faham, ttp, at least ia tidak terbeku dalam fikiran.

Dear friends;
teringat kpd satu perbualan dgn seorg rakan. Mengeluh ttg perilaku sesetgh dari kita yang keluar dari batasan hidup bermasyarakat. ya, kadang2 mmg ada perkara yg membawa pd keluhan dan kekecewaan. Biarpon itu bukan asal dari diri kita.. Saya katakan pd nya, setiap individu mempunyai keupayaan akal yang berbeza walaupon sebaya dari segi usia. Kerana salah satu kemampuan daya berfikir dan bertindak itu dipengaruhi oleh how they were brought up, pengalaman dan surroundings. I believe those are the factors which can lead to human's behaviour. Ada yang terbentuk dari azali, and also we can develop it thruout our life. Pada sy pula, apa jua behaviour yg sy jumpa, sy jadikan ia sebagai satu sumber ilmu. Could it be irritating to me, I would digest and transform it so it would somekinda useful. Otherwise, just get rid of it and don't bother.

Till we meet again, see you soon..very very soon. take care.. !

Wednesday, 14 July 2010

Malam Pertama.

Salam to all.

Catatan hari2 lalu menyusul lagi. Kali ini saya mengimbas kembali situasi malam pertama selepas kemo.

Sebaik sahaja tiba di bilik asrama, disambut oleh rakan sebilik, seorang kakak jurusan kejuruteraan mekanikal. Terus sahaja sy letakkan bungkusan makanan di atas meja. Sebenarnya perut mula keroncong sedari pagi lagi sebelum kemo dijalankan. Jd, dlm keadaan 'mamai' kaki tetap digagahkan singgah ke cafe hosptila sblm ke bus stop. Namun disebabkan badan amat lemah apabila sampai ke bilik, mata sgt sukar utk dibuka ke saiz normal, maka tiada lain yang mampu dilakukan kecuali merebahkan diri ke tilam. Terus saja terlelap, lelap yang tidak lena..

Seketika kemudian saya terpaksa bangun bergegas ke bilik air untuk mengeluarkan apa yang seakan melonjak lonjak ingin keluar dari perut. Yaa, rasa loya dan payau yang tidak terhingga. (Beberapa thn kemudian baru sy tahu ia seperti mabuk teruk ketika mengandung)). Sebenarnya tiada apa yang boleh dikeluarkan, hanya lah sisa cairan..ya lah makanan pon tidak terisi dlm perut. Keadaan tsbt sebenarnya disebbkan reaksi drugs dgn sistem badan. Berkali2 juga tidur saya terganggu semata utk ke tandas. Selain loya dan pening, saya juga berasa ingin membuang air kencing, lebih dari biasa. Akibat dari liquid yg banyak masuk ke dalam badan.

Pagi hari pertama selepas kemo, keadaan beransur reda, tetapi masih ada rasa pening dan loya. Belum cukup stabil untuk menjalankan akitiviti harian, masih lemah. Bak kata org, terbaring FLAT.Saya memaksa diri untuk menyuap makananan sblm mengambil tablet harian. Tidak terasa keenakan makanan, tetapi, itu sudah tidak menjadi perkara utama pada saya. Hari itu ialah pada hari sabtu. Maka, saya luangkan masa dgn merehatkan badan. Didalam diri saya tidak ada sedetik pon rasa kecewa, marah atau putus asa biarpon ketika itu telah merasai kesan akibat dari kemo. Tidak ada pon titis air mata yang keluar, semua nya sudah beku dan fokus utama ialah kembali bertenaga spy dapat hadir ke bilik kuliah pada hari isnin.

Menjelang hari Ahad petang, keadaan lbh terkawal. Mula merasai 'back to normal'. Terima kasih kpd rakan sebilik yang memahami. Membantu membeli makanan dan memahami diri yang lemah longlai, kadang2 beliau mengaku mendengar sy bercakap dalam tidur. Hahar..

Alhamdulillah, pada hari Isnin, sy mampu berjalan ke bilik kuliah. Tiada satu pon kuliah yang tertinggal kecuali pd hari jUmmat ketika saya menjalni kemo. Kemudiannya saya meminjam nota rakan utk menyalinnya. Alhamdulillah, rakan2 serta pensyarah memahami keadaan saya. Semuanya berjalan lancar. Jadi, untuk apa saya menyesali takdir ini?? Bahkan pd ketika itu, sedikit sebanyak saya merasai kenikmatan dugaan kecil yang Allah berikan pada hambaNya ini....Walaupon ketika umur masih muda, tetapi dugaan itu telah membantu saya matang dari usia. Itu kah antara nikmat yg dpt sy rasai.

Sahabat2 sekelian,

Hari ini, saya sudah berkeluarga dgn dikelilingi olh anak2 ceria dan org tersayang. Tiada apa yang lbh saya sesalkan dlm hidup ini jika saya bertindak utk terus menyimpan cerita lampau ini ketika sahabat2 lain yang menderita penyakit yang sama tercari cari 'rakan kongsi' mereka.!. Berkongsi pengalaman dgn anda semua ialah suatu yang paling mudah dilakukan dan Insyallah bermanfaat kpd umum secara amnya. sy fhm ada golongan yg memandang negatif, sinikal trhdp insan kurg bernasib baik d pesakit2 kronik..yg sentiasa berulang alik ke hospital.. yg diselimuti olh bauan ubat2, yg menyesakkan hidung..(kdg2). Dulu sy juga mmpunyai sdkt perasaan begitu, ttp skrg, i feel blessed. Tiada satu pon momen yg ingin sy padamkn dlm aturan hidup sy. Apa yang kamu sangka tidak lah sebegitu teruk, malah kami dgn ikhlas mengatakan bhw: 'Alhamdulillah, krn Allah telah memilih kami'. Redha, itu lah kata kunci yg membawa kpd ketenangan hidup dlm apa jua situasi.

Till we meet again, see you soon very very soon. take care.!

Monday, 12 July 2010

Happy dayss.

Salam to all
Diam atk diam, sudah masuk pertghn bulan Julai. Cuaca di Sheffiled sekrg ini cukup baik. Hujan turun membasahi bumi, kesinambungan dari terik matahari beberapa hari seblm ini.

Agenda hujung minggu lepas agak ketat juga. Bermula se awal pagi sabtu, kami sekeluarga ke Goodwin Sport Center utk beriadah. Pilihan kami ialah badminton. Di sertai 2 keluarga sahabat lain. Wau, ini lah kali pertama sy bermain badminton selepas kecederaan di siku kiri setahn lepas. Permainan kami berjalan dgn amat baik sekali..Alhamdulillah, dpt lah keluar peluh.

Sebaik shj selesai 2 jam di situ, kami beransur pulang utk bersiap ke Summer Fair di sekolah anak2. Seronok merasai suasana ibubapa, anak2 dan guru dlm acara tsbt.
Usai acara stsbt, kami bergegas ke rumah teman yang meraikan ulangtahun anak sulung mereka. Dapat lah berehat serta bertemu rakan taulan. Dan perbualan peralih dari satu topik ke topik yang lain tanpa sedar waktu menghampiri football match. Beredar dari situ, kami bersama2 kwn2 yg lain bertandang ke rumah jiran (juga kawan kami) , semata2 menonton bola bersama2. Wowwww..what a day..!

Pagi besok, kami bersama 4 family yg lain ke trip memetik buah2an. Ini adlh antara perkara wajib..memetik pelbagai jenis berry. tapi di sini cukuplah dgn stoberi dan ceri dahulu.

Pulang ke rumah sebelh tghri Ahad itu dgn penatnya. Hahar.. tp cukup menyeronokkan. Sebelah petang ke malam kami menghabiskan masa bersama di rumah,, fokus kpd perlawanan akhir bolasepak Pila Dunia.

Itu lah antara aktiviti kami di hujung minggu. Sebagai pengganti kpd aktiviti biasa di Malaysia spt ke kenduri kendara, menziarah keluarga dll.

Terima kasih kpd teman2.

Ada sesuatu yg tidak dpt dirungkaikan dgn kata, tetapi iA akan di zahirkan dgn tali persahaban yg ikhlas.

Till we meet again..
see u soon., very2 soon.

Friday, 9 July 2010

Berakhirnya kemo yg pertama..

Salam Jumaat to all;
JUmaat datang lagi. Bangun pagi hari ini dgn cuaca yg agak sejuk, berbeza dgn hari2 sebelumnya. Ohh rupanya hujan semalaman. Alhamdulillah, dan waktu siang hari ini pula dijangka cerah. Dan esok diramalkan cuaca panas hingga mencecah 26C. Uhh sgt panas, jika benar .. pastikan lengkap dgn sun protection.

Dear friends,
My first chemo ended smoothly, as it should. After 6 hrs laying down ,waiting to the last drip from the last pack, the nurse came to clear all the IV connection & the tube. My feeling was not stable at all. But I knew that I had to go back to campus. And also I knew I had to do all by myself. No one came to pick me up. With pescription (for my tablets), off I walked to reach the bus stop. It was about 15 min walking from the haemodylisis center to the bus stop, which is opposite to the hosp. As it location just nearby the beach (Pantai Lido), the haze made me more likely to fall sleep at the bus stop...! To be honest, I had no strength to stop the bus unless there was one stopped by other passenger. I was too weak too open my eyes, but , Alhamdulillah,..about 1 hr later I reached my room safely. Hanya Allah sahaja yang mengetahui situasi ketika itu dan hanya Allah yg membantu. If you ask me how I managed to do that, I'd say I really don't know. I was too naive to think much abaout that, my thought was only to get well. That's it and full stop. I put rest to Allah. Berusaha, bersabar, berdoa dan bertawakkal..dan redha. But if any of us would like to do the same, I will be the first person who will say 'NO'. You better get campanion.OK..

Dear friends;
Pada hari esok kami sekeluarga akan ke mengahdiri suatu event yg diadakan oleh pihak sekolah dgn tema 'international fair'. International family (foreign family) digalakkan utk menyumbang idea 'permainan tradisional' negara masing2 dan bermain2 bersama2. Sounds interesting. Also we are welcomed to contribute our traditional sweet or delacacies so that they can sell it to public. Ermmm...thinking what kinda games if we have one.? of course we do have, ..ok then we'll see how it goes.:)

Till we meet again, see you soon, very2 soon. have a nice weekend..

Thursday, 8 July 2010

My First Chemo :)

Salam to all;
We have a on-off light shower since yesterday. Not a suitable time to do laundry. But it brings happiness to my plants , i think:) What a theraphy..seeing the plants growth, lovely moments. Knowing that I won't be be able to do the same when I'm back to my hometown, definitely it will a memorable moment to us. It is becoz the weather totally not permittable in my country, it's too hot unless planted in a closed-controlled-weather area suit to plant strawberry, lettuce, tomato.

Dear friends;
Back to my treatment to fight against Lupus. I agreed to undergo chemo and as to meet my requirement ( i tried not to minimize my abscence from attending lectures), we decided to do on Friday morning. It took 6 hours. So, by the time Monday comes, I managed to carry out my routine. Saturday and sunday were the 'cooling' time, to help me recover from the effect of the chemo and get me back on track.

The first day of chemo. Went alone to Haemodylisis Unit, Hosp S Aminah. As early as 8am, I showed up at the place and had a prior short checkup such as weight, height, blood pressure, blodd test n urine test. So that they know the exact amount of liq(drugs) to be taken. The chemo was then referred as cyclophosphamide. with a mixture of drugs, very strong drugs.

The moment will be never vanished from my memory..no one won't ever deny how painful it is..from the time they inserted the needle (IV), and lasted for 6 hours.All the way, I can feel the side effects, resultant from the reactions between the drugs with my body. It was ssoooo unbearable. Dizzy, like to vomit, drowsiness and I feel my body was full with the liquid (3 packs altogether). My feet became swollen, so i put on a bit large in size of sandal. And all I can do, was..waiting and waiting patiently to the end of the session. The room was very chill, maybe to make sure each patients/instruments are in a stable condition. I was the only one who doing the chemo meanwhile the rest were kidney failure patients who were doing haemodylisis.

Dear friends;
Flashing back the moment of hardtimes sometimes make me a bit sad and down. Nothing to hide of. BUT, Not to say that I refuse to continue this story, but it's like that I'm back to that time, which i will never ever to dream of. Well I think anyone in my position would feel the same. It's normal yeahh..

Ok, freinds, today.. I just back from shopping mall with my hubby. Today we just wanna be notty, while the kids at school..! Spending a few hours together, just two of us, ..to get refreshment hahar.. enjoy a scoop of icecream, ..to keep the romance on and on.. to bring on the fire ..until sunddenly..kringgg!!! a phone call from his SV..ishk kacau daun betul kahkah..

Till we meet again, see you soon, very very soon. Thx for reading.

Tuesday, 6 July 2010

Responsiblity.

Salam to all
Anak2 sy pulang dari sekolah dgn membawa bersama laporan tahunan (annual report) setiap seorg. MMM... Masa untuk kami duduk dan cuba memahami setiap satu perkataan yg ditulis dlm summary report mrk. Jelas berbeza dgn report dari sekolah di tanahair, krn di sana ibubapa dpt melihat dgn jelas prestasi anak2 berdasarkan markah dan gred. Di sini, penilaian dilakukan secara general, dinilaikan secara level a,b,c, atau d. Lebih krg spt terbaik, baik, perlu perhatian, sgt perlu perhatian. Apa2 pon, di dlm summary akan ditulis 'well done', proud report n what so ever. Jd, sebg ibu bapa amat penting kita melihat secara teliti prestasi anak2 dari penilaian yg kita lakukan sendiri di rumah dan juga di sekolah. Kemudian, barulah ibubapa mengambil langkah sepatutnya thdp anak2 ini.

Di sini anak2 tidak dilabelkan kurang pandai (sekiranya betul pon kurang pandai), tp mereka akan cuba mencari sebab kenapa anak2 kurang perform dlm subjek tertentu. Cth nya, anak2 di observe perlakuan, cara berfikir yg mn mempengaruhi self interest mrk. Maka, anak2 ini akan digalakkan lbh kpd bidang mana yg disukai. Well, tiada istilah paksaan utk cemerlang dlm SEMUA subjek, jd, anak2 amatlah rileks ketika di sekolah. Hmm... spt kata si abang, " I like to go back to Malaysia bcoz i can play outside with my bike all the time, but i don't really like to go to school(Malaysia). I prefer to go to school in UK but i need to wait summertime to play outside n that's boringgg".

Dear friends;
The children has ability to carry their own responsibility if they're given chance to do the tasks. In fact they are proud to become someone like an adult. I can see my eldest behaves like his dad n sometime like me when it comes to try to sort out his sibling's argument. That's one way the child starts to establish his personality as a protecter,, to protect any further harmful argument from the siblings ..hihih.

And we, as grown-ups, of course the task seems essential to carry on in daily life. It's a must-things-to-do. Be a resposible person. And when we are growing more mature; the sense of willing to carry out the responsibility goes beyond what we expected. If we take that task as one way to enjoy the life, we'll not see it as a hassle things to do. It's just come naturaly, as long as we're capable in that task. Guess what quite sometimes you never knows it's actually suits you, u never know it until you try it out..! Of course, it might consume our time, energy, emotions but, just think of one thing: sincerity. You will gain priceless experience, hv chances to know a lot more people , to meet new people and get compliments! When it comes to a volunteer task, it will become evenmore complicated, denial, refusal from our inner self. But remember: when we do something good deeds, insyaAllah, the goodness will come back to our life. Or maybe to our children's life in future. Yeahh,,There a lot of things that money can't buy. We are not in position to see our future, right, so stay positive. At the end of the day, it will be something that you will never forget and finally thanking Allah for HE had opened your heart to take the task. The sweetness will come later.. Believe me, coz I had endured this kinda volunteer job, eventhou I was nobody. I'm now feeling so grateful at least I did something that I personally proud of..most importantly it was not becoz of any title..'Bukan kerana nama..' I believe there're a lot more ppl do the same :))

Dear friends;
To end this entry, I would like to say thank you to everyone who has been following this blog. Till we meet again, see you soon, very very soon.

Monday, 5 July 2010

Amusement days.

Salam to all.
Syukran to Allah to give me a new day to write in this blog. Honestly, I'm doing this for the sake of the people around me. To let them reach a source to know better about what Lupus is all about. I'm not doing this to promote myself, none of that kinda thing. Never in my intention. No speculation plsss..

There is another way to get information of Lupus such as website, any medical books and magazines and others. If you happen to know the patients of Lupus and kindly to share, that's will give more advantage. The more patients you know, the more knowledge you'll gained. Having said that their experience is unique to each other, I myself would like to know a lot more people who willing to share thier experience. Hey, gaining n digging knowledge is an endless process of learning :)

Dear friends, in previous post I have started to share the early stage of treatment done regarding my bad helath condition. As what the doc advised me to do,..the renal biopsy procedure went smoothly. No post-complication. ALHAMDULILLAH. After a couple of days in ward, they let me go back to campus and so that I can continue my classes as usual. About 2 weeks later, they rang me and set an appointment, to release the result from the analysis of biopsy. I was told it was Nephritis Lupus Stage 4. The best treatment was a Chemotherapy, 3 monts cycle, 10 times finishes within 2 years. In the meantime my steroid prescribed as usual. Allah gave me such a strengh I never ever thought to have it, only Allah know how lucky I was to have been so cool to get thru this way of life. To response to the biopsy result,I said yes Doc, I will come for the first session as scheduled without a long delay.. And a new chapter of another treatment began...At the moment,I had no idea what the chemo is all about. All that I knew was : I MUST GET THINGs RIGHT. I must get well so I can reach my ambition. To graduate. A young lady with an definte dream..!

Dear friends,
My recent weekend was so awesome one.! From attending a memorable outdoor event in Sheffield ; 'Family Day' to a visit from old friends to our house, oohh it was just filled us with more excitement..! The weather of course seeemed promising, hot and hot but not so fatal for me..ngeee ..and with the help of my sun hat, it was a moderate sunbath.



mY HAt

As I was the only only one with a hat in the event, it had sparked a few notty words from others. But for me, it's one of thing which I can't live without. hahar..it looked weird, but it's (sun protection) essential to person like me. How can I explain more. ? [Pls refer to previous post.]

Bye for now, till we meet again, see you soon,,very2 soon.







Friday, 2 July 2010

Ingin Terus Bernafas.

Salam to all
A fine morning. Sekejap jer dah habis satu minggu. Lately mcm cepat pula masa berlalu. Normal bila tiba musim panas. Aktiviti here n there, masa berjalan pantas tanpa disedari.

Beralih pandangan ke belakang, Menjengah pengalaman lalu..
Kesihatan ku selepas rawatan dihospital dan di rumah semakin baik. Elok sgt la tu, krn perlu persiapkan diri kembali ke bilik kuliah. Sebaik shj kelas bermula, kwn2 terkejut dgn perubahan fizikal ku..hihi ..kenape kurus ni?? itu soalan lazim sejak hari pertama kuliah. Ku cerita kan sedikit, kdg kala banyak juga..tetapi yg pasti kebanyakannya memandang kosong. Mendengar tetapi sukar memahami. Tak apa, aku pon tak daya nak explain se detailnya. Jawab lah seadanya.

Aktiviti di kampus kujalankan seperti sebelumnya. Cuma beberapa perkara ku perlu ku selesaikan. Tempoh perjalanan ke kelas ku panjangkan sedikit, jalan ku tidak sepantas dulu. Perlu mengambil kira laluan teduh yg menjadi pilihan ku sejak itu.

Tanggungjawab ku tunaikan, trip to hospital utk dirujuk kepada sekumpulan pakar di situ. Alhamdulillah, semuanya berjalan lancar tanpa masalah. Consultant yg merawatku merupakan seorg yg pakar dlm Lupus dan sgt cekap. Beliau memahami tugasku sbg penuntut dan menyokong penuh apa yg ingin ku capai. Seperti dijangka , aku disarankan untk menjalani 'renal biopsy'. Proses utk mengambil sedikit sel buah pinggang utk dianalisa seterusnya mengenalpasti tahap Lupus ku. Akhirnya, barulah rawatn seterusnya dikenalpasti. Ok, aku setuju sahaja.

Kelas berjln spt biasa. Di waktu hari appointment ke hosp, aku memaklumkan kpd pensyarah2 yg terlibat(dgn cuti sakit dr doktor). Sekiranya ada experiment di lab atau kuiz/test, aku diberi pelepasan utk menjalaninya 'face to face' atau melakukannya di waktu lain yg dipersetujui. Alhamdulillah, tiada yg menghalang perjalanan cita-cita ku dan menjalani rawatan pd masa yg sama. Jarak ke hosptila lbh kurang 40min menaiki bus. Semuanya elok shj, Allah telah melindungi perjalanan pergi balik. Syukur.

Dear friends;
Apabila hari baru menjelma setiap hari, apakah yg terdetik di hati kita? Adakah kegembiraan kerana masih diberi nafas, atau kebimbangan dalam menghadapi cabaran utk hari esok?

Till we meet again, see you soon, very2 soon.

Thursday, 1 July 2010

There's Always Something Good in Life.

Salam to all.
Here comes a brand new month.July. Thursday. It's not too bad weather, a bit rain would be in the afternoon.

Dear friends, back to my memory..17 years ago. After discharged from the hospital, I realised that there was something good behind what had happened to me. My personal behaviour, perception, the acceptence to the faith turned to a better one. ..ermm it had made some changes in my personal life. And also the relationship, the togetherness among the families. When you are in trouble you will see who will be next to you. And the answer is definitely your family. They will be always beside you and help you to get through the hardship.

Apabila badan semakin ringan dan segar, fikiran menjadi tenang. Sehingga kini, sy merasakan aspek penjagaan pemakanan yang betul menyumbang kepada kemajuan dlm masalah kesihatan ketika itu. Tetapi, still i needed to go to further treatment. And beforehand I needed to undergo a few test to get into proper medication. I was advised to undergo a simple procedure..' kidney biopsy'. Tetapi,...

Musim cuti pon berakhir. Bererti sy harus pulang ke kampus di JB. Semua dokumen perubatan dipindahkan ke Hosp Sultanah Aminah utk rujukan pakar di sana. Surat rujukan telah disediakan, saya dikehendaki membawanya ke bahagian neurologi bertemu doktor pakar. Dan oppsss, jgn lupa saya bakal ke tahun 4 di university. Harus juga bersedia apa yg patut. Excited juga utk bertemu kwn2 sekampus. Perasaan saya ketika itu ..?? Ok jer..seperti selalu :)

Dear friends;
Semalam hari yang amat menyeronokkan. Selain daripada menerima perlatan dapur yang diidamkan... (ehem2 tq mr hubby), sy juga gembira dgn hasil tanaman dari 'kebun' kami di backyard. On top of it, kami menerima kunjungan 2 keluarga dan sama2 menikmati dinner di rumah kami. dan salah satu drpd menu ialah hasil tanaman kami ! Seronok bukan..!

Till we meet again, see you soon. very2 soon.